About us

PATRONS

Dña. Isabel Lavín de la Cavada

Founder and President

D. Valero Soler Martín-Javato

Secretary
Notary

Padre Javier Siegrist Ridruejo

Spokesman
Priest in Boadilla
del Monte (Madrid)

D. José Mª Michavila Núñez

Spokesman
Ex-Minister of Justice,
Lawyer

D. Borja García-Nieto Portabella

Spokesman
President of Grupo
Financiero Riva y García

D. José Carlos Rodríguez San Pedro

Spokesman
Entrepreneur

Dña. Irene Vazquez Romero

Honorary Patron

SCIENTIFIC COMMITTEE

Dr. Julio Montoya Villarroya

CIBERER- Boss of the Team U727
Professor of Biochemistry at the University of Zaragoza

Dr. Domingo Gonzalez-Lamuño

Genetitian at the Hospital Universitary Marqués de Valdecilla -Santander-
President of the Spanish Society of Inborn Errors of Metabolism.

Dra. Àngels García-Cazorla

CIBERER – U703
Neuropaediatrician and head of the Metabolic Diseases Unit of the Hospital Sant Joan de Déu -Barcelona-.

TECHNICAL TEAM

Patricia Bienert Rosés

Communication and RRSS

Ombline Smit

Management

VOLUNTEERING

Christina Smith