About us
PATRONS
Dña. Isabel Lavín de la Cavada
Founder and President
D. Valero Soler Martín-Javato
Secretary
Notary
Padre Javier Siegrist Ridruejo
Spokesman
Priest in Boadilla
del Monte (Madrid)
D. José Mª Michavila Núñez
Spokesman
Ex-Minister of Justice,
Lawyer
D. Borja García-Nieto Portabella
Spokesman
President of Grupo
Financiero Riva y García
D. José Carlos Rodríguez San Pedro
Spokesman
Entrepreneur
Dña. Irene Vazquez Romero
Honorary Patron
SCIENTIFIC COMMITTEE
Dr. Julio Montoya Villarroya
CIBERER- Boss of the Team U727
Professor of Biochemistry at the University of Zaragoza
Dr. Domingo Gonzalez-Lamuño
Genetitian at the Hospital Universitary Marqués de Valdecilla -Santander-
President of the Spanish Society of Inborn Errors of Metabolism.
Dra. Àngels García-Cazorla
CIBERER – U703
Neuropaediatrician and head of the Metabolic Diseases Unit of the Hospital Sant Joan de Déu -Barcelona-.
TECHNICAL TEAM
Patricia Bienert Rosés
Communication and RRSS
Ombline Smit
Management
VOLUNTEERING
Christina Smith