Book “Why does my child have a rare disease?”
President of the Drug Research Ethics Committee
Mother of a daughter with an ultra-rare disease, the SDNP syndrome, and vice-president of the Cantabrian Association of Women Entrepreneurs.
Last Tuesday, July 4th, the Mencia Foundation accompanied the Doctor and researcher Lluis Montoliu in the presentation of his book “Porque mi hijo tiene una enfermedad rara?” at the Real Hotel in Santander. Our president Isabel Lavín was invited to say a few words.